Yeah so this past month or so has been a wee bit rough on me. This post isn’t really for feelings or anything like that, just more of an explanation of what’s happened and what may happen, just so I don’t have to explain so often to friends/family/etc. Sort of a FAQ, I guess. Once this explanation is out of the way I can finally move on to more trivial things. The subjects I enjoy. Like relating tv to sports or vice versa. Is there a real world or hollywood version of the Zidane headbutt? I’ve racked my brain and the best answer I can come up with is Tom Cruise. Huge international star on the tail end of his career melting down (aka displaying his sick love) on the biggest stage (The Oprah Winfrey Show) turning him from a highly celebrated actor to nothing but a tabloid joke. Before this incident, Tom Cruise was untouchable despite the small bits of craziness he displayed when touting his crazy alien religion. This parallels with Zidane’s small cuckoo moments like when he lost his temper stomping on a Saudi Arabian player, or when he hears voices in his head telling him he will lead France to glory….
But I digress….
There are only so many times I can say to people “Ah don’t worry about it, I’ll explain it all in my blog real soon.” before they stop believing that I’ll do it.
I got the pictures a week ago.
On with the show…

Q: So WTF is the pancreas for anyways?
According to Wikipedia, “The pancreas produces enzymes that break down all categories of digestible foods (exocrine pancreas) and secretes hormones that affect carbohydrate metabolism (endocrine pancreas).”
or… It makes the juice the melts down the foods so body can live off mush.
Q: So dude, why aren’t you drinking beer?
Because I’m a prude. And because alcohol and/or a high intake of fat in one sitting can easily trigger pancreatitis for me. Avacado and/or a nasty amount of mayo are almost guaranteed to give me some pain.
Q: Can’t you have it just taken out?
Most people confuse gallbladder and appendix with the pancreas. Not the same. But anyway, yes I have found out that you can live without a pancreas in extreme circumstances, but most definitely as a last resort. If I do have the pancreas removed then my lifestyle would be greatly affected as I would have to take multiple insulin shots a day. I’m not sure if daily life would be affected in other ways beyond that, but my doctor said that option is waaaaay down the road so don’t focus on it.
As a side note, I have already taken my gallbladder out in relation to pancreatitis. Doctors believed that the gallbladder was affecting the pancreas in a negative way. Honestly I’m very fuzzy on the reasoning behind the motivation for doing this as it was three years ago.
Q: What does the pain feel like? How much does it hurt?
I find it kind of hard to answer this question because I don’t want to exagerrate what I’m experiencing but at the same time I don’t want to downplay it either.
When I’m having acute pain, it feels like there is a hand within my body that is grabbing my insides and squeezing. There is also a stabbing nerve pain going from about halfway into the thickness of my torso shooting to the back on my left side.
As for chronic pain, the squeezing pain and shooting pain can come and go every so often. But when walking or doing any physical activity it kind of feels like there’s a small four-square ball bouncing around inside me.
As some of you know, I have broken my leg in the past. In my opinion, a broken leg hurts less than acute pancreatitis pain. A broken leg doesn’t really hurt that much unless someone moves it for you. But if it’s immobilized or you’re not moving it, it’s not really a problem other than it’s throbbing a lot.
So… as the medical people like to say, “What is your pain level on a scale from 1-10?”
10: Worst pancreatitis pain.
9: Someone moving my damn broken leg. That asshole.
8: Seeing your face. Oh snap.
7: Watching the White Sox’s playoff hopes slip away.
6: Stabbing pancreatitis pain.
5: Medium pancreatitis pain.
4: Spraining my thumb. That asshole.
3: Chronic pancreatitis pain.
2: Chronic pancreatitis pain.
1: A hangnail.
I think my frame of references are a little messed up. Whatever. It’s all relative anyway.
Q: I know this awesome local gastro guy you should go see!
Thank you for the recommendation, but I’ve already seen some of the best at Northwestern Hospital. Right now, the guy I’m seeing at Mayo, Dr. Chari is like a pancreas super specialist. Great doctor. Very accommodating and explains what is going on very well. The doctor performing my procedures is Dr. Barron, specifically recommended to me by my cousin (who is also a Gastroenterologist in Minnesota) AND Dr. Chari (who my cousin also recommended). I feel very comfortable in the care of these people as they have discussed numerous options with me while doctors back in Chicago (even at Northwestern) were sort of stumped as to the next steps of treatment.
However, I AM looking for a new primary care physician as I have come to the conclusion that my current doctor absolutely sucks. So if you know of one who preferably has an internist background please let me know. There has been one doctor that has been recommended to me recently but she is booked and can not handle any more patients.
So this is me, or rather, a slice of me.

The part I highlighted is my pancreas. Calcifications of the pancreas are indicated by the white spots on the CT scan. Do you notice how the pancreas is pretty much touching everything around it? It’s not supposed to, it’s pushing on other organs in my body because of the inflammation. My previous CT scan during an attack two months earlier did not display anything close to that degree of inflammtion. Even though it was inflamed before, the pancreas was small enough to display a nice spacious black border around it. There’s no border in the above picture which explains why this attack was much more painful than previous ones and took a lot longer to get back to “normal” size.
Video!
Video of my CT scan.
The video shows my body slicewise going from high to low. You can make out the pancreas as it comes into view and get a nice look at the pancreatic ducts (main and branches) as they pass by. The video gives a more 3D representation of my pancreas as you can see how kind of scattered some of those calcifications are. You’ll notice that it kind of looks like fireworks going off in the head and tail end of my pancreas.
Q: Can you have all those calcifications removed?
Not really. Anyway, that doesn’t really solve anything. While those calcifications may impede the ducts and cause backup of fluids in my pancreas, removing the calcifications doesn’t necessarily mean that they won’t come back. Besides, most of the blockage is in the hard to reach branches of the ducts and not in the main duct.
Q: What’s next?
Well, on Friday July 28th, I go back to Mayo to have my stent removed. This is the second time I’ve had a stent put in me. (First time was a few summers ago at Northwestern.) The process of removing a stent isn’t a surgery persay, it’s more of a procedure. I don’t get cut up as they do all the work by coming in through my mouth.
Order of things as of right now…
1. Removal of stent. Wait to see how my pancreas reacts. If within a couple weeks it’s okay, then great. If not….
2. Consideration of nerveblocking the pain. Obviously this is a catch 22, b/c how can I tell something is wrong with my pancreas if I can’t feel the pain? I’m very dubious about this one.
3. Consideraton of filleting the pancreas. This is actual cut me open slice me up and make me a sandwich surgery. It is basically what it says, fillet the pancreas so it can drain better. Oh yeah they take a piece of my instestine and attach it to the pancreas to act as a funnel into the stomach.
Q: Eh… I expected more pics and videos. What happened?
To be honest the other x-rays / MRI’s / CT scans weren’t very interesting images. The most notable thing about the images was that the CT scan at Mayo revealed a LOT more detail than even the MRI images from Good Samaritan, let alone the CT scan images. I guess that just shows how much better the equipment is over there. Although, I’ll take Good Samaritan nurses any day over the Mayo nurses. Any damn day of the week. They’re just more skilled. Period. I’ll eventually just post some more pictures of my pancreas on my flickr for my own poops and giggles.
Okay, I actually have to leave in a half hour for Mayo but I know there are still a few questions that I am repeatedly asked that I did not put down here for lack of time or remembering. But before I leave I’d just like to thank everyone who has visited, called, IMed, or showed concern in any sort of way. I really truly appreciate those gestures no matter how big or small.
See you bitches on the flip side.